This feature documentary is a portrait of Luke Melchior (1973-2021) who, at 26, had already lived longer than most people with Duchenne Muscular Dystrophy, a progressive wasting of the muscles. Knowing his life would be relatively short had made Luke feel an urgency about making a lasting contribution. Living independently, with the help of 3 homecare workers, he ran a web-based business selling outdoor gear, and chaired the board of the Disability Resource Centre in Victoria, BC, where he was a passionate advocate for the rights of the disabled.
Bearing Witness consists of 3 films, each approximately one hour long, on people with life-threatening illnesses. The series also profiles Jocelyn Morton, who died of liver cancer at 44, and Robert Coley-Donohue, who died of ALS (also known as Lou Gehrig's Disease) at age 74.
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Bearing Witness: Luke Melchior, Dan Curtis, offert par l'Office national du film du Canada